You may have heard, either from your ADHD clinician, GP, pharmacist or in the media, that due to a combination of manufacturing issues and an increase in global demand, there is a global shortage of some types of ADHD medicines.
We understand this will be a worrying time. Unfortunately neither your child’s GP nor your child’s ADHD clinician can do anything to help with supply issues but we want to provide you with as much information as we can to try to help you during this time.
What happens if my child has not yet been assessed for ADHD or has received an ADHD diagnosis but has not yet started treatment?
Unfortunately during this time of severe shortages of ADHD medication the national guidance says that we should not start anyone on new ADHD medication. We will continue to offer ADHD assessment appointments as usual but will not be able to start medication.
Once we have been advised we can start new medication again, we will make arrangements to discuss or start medication as soon as we can. Please have a look at the sections on help and support during this time. Your child’s clinician will be in touch again once we have been informed we can start new ADHD treatments.
What is happening with ADHD medication shortages?
We have been alerted by NHS England to a significant shortage in a range of ADHD medication which affects different types, brands and strengths. You may already have experienced difficulty in obtaining medication and this is likely to become more difficult. At present the supply issues are expected to resolve at various dates over the coming months (depending on the type and strength of medication). The shortages include:
Equasym XL 10, 20 and 30 mg capsules
Xaggitin XL 18 and 36 mg prolonged-release tablets
Concerta XL 54 mg prolonged-release tablets
Xenidate XL 27 mg prolonged-release tablets
Elvanse 20, 30, 40, 50, 60 and 70 mg capsules
Intuniv 1, 2, 3 and 4 mg prolonged-release table
There has been an ongoing shortage of all capsule strengths (particularly 40mg and 60mg) and also the liquid.
We expect these supply issues to affect most children and young people taking ADHD medication and to cause disruption to treatment. This will mean that:
- treatment is likely to be temporarily paused for many until the medications are back in stock
- some children and young people may have to take lower doses of their medication or may not be able to take it every day
- the national guidance is also not to start anyone on new ADHD treatment during this time
The shortages are caused by a combination of manufacturing issues and increased global demand, and suppliers are working hard to resolve the issue.
We recommend that where possible your GP writes prescriptions for different strengths to make up a total daily dose. In some instances your GP may need to change the brand of medication (ie the same type of medication but made by a different manufacturer). We are working closely with GP practices to keep them informed of the situation, and also to advise on restarting medication once it becomes available again.
Is it safe to pause or stop ADHD medication?
Please be assured that there are no health risks if your child has an unplanned break in taking their ADHD medication unless they are taking Guanfacine/Intuniv (see below).
We understand that this may be difficult for your child but would like to reassure you that a temporary pause in taking ADHD medication won’t cause them any physical harm. With most ADHD medication, your child can stop taking them, or take them on certain days and not others, without any ill effects.
However there are some exceptions to this and advice is provided below for different types of medication.
- Guanfacine/Intuniv: If your child is taking this medication it is very important to reduce slowly before stopping and this must be done under the guidance of your ADHD clinician. Please contact your child’s clinician as soon as possible if you have not yet heard from them. If you do not have the number, email CAMHS.ADHD@berkshire.nhs.uk or call 0118 904 6401. You only need to call us if your child is taking Guanfacine/Intuniv. The CYP ADHD service cannot help with accessing medication.
- Stimulant medication: Stopping stimulant medication i.e. Equasym XL, Concerta XL, Xenidate XL, Xaggatin XL, Elvanse, will not cause any harm to your child. They can stop taking this or use it only on certain days without ill effects. Whilst supplies are limited, we recommend that your child takes their medication on school days, but not on weekends/half terms/holidays. You may also want to plan well in advance so that your child has some medication for any significant events such as mock exams.
- Atomoxetine: Stopping this will not cause any harm to your child and they can stop taking this without ill effects. We find that taking Atomoxetine some days and not others may not work well. It is usually best to either stop completely or to continue taking some every day.
What happens if my child has to pause or stop taking their ADHD medication?
Although stopping treatment is safe, if your child has to pause or reduce their ADHD medication, then their ADHD will of course have more impact on them at school and at home. The Berkshire ADHD Team will be contacting all schools to explain the need for additional understanding and support during this time as well as providing information on resources.
In most cases we don’t recommend switching to another type of medication if your child’s medication runs out. This is because:
- It may not be the best medication for your child.
- The time it would take to get the dose right for your child.
- We anticipate shortages will be resolved before your child gains the benefit from any new medication.
- Your child would then need to change back to the original medication once it becomes available.
What can I do to help my child?
- We recommend requesting prescriptions with as much notice as possible and ringing round pharmacies to check what they have available as supply of medications can vary from pharmacy to pharmacy. You may have more luck with smaller, independent pharmacies.
- You can use the Boots prescription stock checker online to look at stocks at nearby Boots stores. Please be aware that supplies are not guaranteed, or reserved, and will generally be very low currently. It’s best to telephone in advance if possible, to avoid a wasted journey. Remember to take photo ID with you if you are going to a new pharmacy (this is needed due to ADHD medication being a controlled drug).
- Consider whether your child can manage a trial off medication – this may be an option, particularly as this is recommended for some treatments. If your child has a break in taking their medication, keep in touch with school and make sure they are aware of this and are looking at how they can support.
- Keep in touch with school and make sure they are aware of any unplanned changes or pauses in ADHD medication and the impact of this on your child so they are aware and can look at the support they can provide in school (we will also be writing to all schools as well).
Some strategies that may help your child
- Frequent movement breaks: Movement can help the brain to focus and reset. It may help to provide extra fidget toys or schedule extra breaks throughout the day.
- Schedule time for calming activities: ADHD can make it tricky to switch off. Schedule time into the day for calming activities like art, going for a walk, playing football, etc.
- Try to stick to a routine: This can be hard for children and young people with ADHD, but it helps the brain to know what’s happening. This includes getting enough sleep.
ADHD can make it harder to regulate emotions, so encourage your child to talk if they are struggling.
Where can I access support?
If you are not already a member, we invite you to join our online support network (SHaRON) where you can connect with other parents and with the Neurodiversity Service. If you would like to join please email your name, your child’s name, and your contact details to: email@example.com
You can access support from the NHS commissioned ADHD support services:
- For East Berkshire (if your child's GP is in Bracknell, Slough, Windsor or Maidenhead) visit Gems4Health
- For West Berkshire (if your child's GP is in Newbury, Reading or Wokingham) visit Autism Berkshire
- See also Parenting Special Children
Here are some other resources that might help:
- Understanding and supporting my child’s ADHD (opens PDF)
- A teenager’s guide to ADHD (opens PDF)
- ADHD for children (opens PDF)
- Download our PDF to find out all of the support available before, during and after an ADHD assessment (opens PDF)
We will be writing to all parents, carers and SENDCos regarding the situation. You can read your letter here:
- If you are a parent or carer and your child is currently prescribed ADHD medication (opens PDF)
- If you are a parent or carer and your child is waiting for a medication appointment (opens PDF)
- If you are a school SENDCo (opens PDF)
For urgent mental health concerns
Outside of these hours, call freephone 0800 129 9999
Please note this service is for urgent mental health concerns only and will not be able to advise on accessing ADHD medication.